My wife is not well.
This is mostly addressed to her.
I know where you are. I’ve stood in the same place myself twice before, the last time barely five months ago. Hell I’m still there now, caught in a Sisyphean trap by an illness that wipes weeks of improvement away in a single moment of dis-cognizance. So when [...]
Thursday, February 4, 2010
As it turns out I have NEADs.
That’s Non Epileptic Attack Disorder.
I spent much of Monday and most of Tuesday in hospital, wired up to a box and on camera 24/7. The box was some sort of mobile EEG meter and the camera was to catch me having a seizure. I wasn’t allowed to leave the ward, or [...]
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Tuesday, January 12, 2010
So I had an MRI scan on Friday. Well I say ‘had’, they don’t make MRI scanners big enough for my ego, shoulders, arms, belly…
Basically they had to wedge me in tightly, to the point I lost all feeling in my extremities. After more than 8 minutes of this and facing another 8 I started [...]
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Tagged crisis
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Tuesday, November 24, 2009
So I spoke to the neurologist yesterday; the CT scan and the EEG apparently showed nothing. NOTHING.
So either I’m having “non-epileptic seizures” (read as “you’re crazy”) or their tests didn’t show anything because, as a cousin has pointed out, they only really work if you have a seizure during them.
So much for that then…
I’ve asked [...]
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Tagged crisis
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Saturday, October 31, 2009
Sorry I haven’t blogged for a while but what with one thing or another…
This week I was brought low by a meeting with social services; builders outside began to cut concrete paving slabs and the noise set off my illness. Thankfully Alison, my therapist, was attending and she led me off to recover, a number [...]
Tuesday, October 20, 2009
Yesterday I had my EEG and it was interesting, somewhat amusing and quite sticky.
The sticky bit comes from the gel they use to attach the electrodes to my head.
Although I was told it was completely passive I’m sure I could feel a current pass through different parts of my head at different stages. For most [...]
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Okay if you’ve been following my twits or know me via facebook then this is old news.
On Tuesday I had a CT scan. They stuck my head in a machine that looked like a giant polo mint combined with an ipod. It whirred around a lot and scanned my brain.
Then they sent me home, dizzy. But [...]
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Some would say its long overdue, but I have dates for my scans.
My CT scan is the morning of this coming Tuesday.
My EEG is in late November.
The sooner the better is all I can say. I had a string of Outs today, each being triggered by the vibrations of the bus I was on as [...]
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Thursday, October 8, 2009
I’ve just joined the lemming pack and signed up to Twitter. Now everyone can know when I come to somewhere unexpected. Oh the hijinks that shall ensue.
I can be found, of course, under the username of Planetniles.
Presuming anyone is actually reading this blog.
I have an amusing brain disease.
It started, well I don’t really know when it started. I noticed it first back in February; others had noticed something amiss years back.
Back in February, under a considerable amount of stress and pain I nearly blacked out. The world faded away, retreating from me like a tide [...]
My Twits